The National Alliance for Caregiving, in partnership with the LEAD Coalition, has released “Paving the Path for Family-Centered Design: A National Report on Family Caregiver Roles in Medical Product Development,” which explores the vital roles that family caregivers can play in shaping biomedical research and development, regulatory decision-making and healthcare delivery. Specifically, the first-of-its-kind report begins a dialogue on how to incorporate the critical knowledge of caregivers in developing pharmaceutical products, biologic therapies, diagnostics and medical devices. The report provides recommendations for leveraging caregivers’ enormous reservoir of information and observations about the conditions their care recipients experience and associated health outcomes. To read the report summary and or the full report, click here.
NAC and LEAD Coalition release national report examining roles for caregivers in medical product development
