As LEAD Coalition members and allies know, the National Institute on Aging (NIA), in conjunction with the Department of Health and Human Services as part of the National Alzheimer’s Project Act (NAPA), planned to host the second National Research Summit on Care, Services, and Supports for Persons with Dementia and their Caregivers on March 24-25. Unfortunately, the event was canceled in accordance with COVID-19 physical distancing guidance. In lieu of hosting an in-person event, the NIA will host a 2020 Dementia Care, Caregiving, and Services Research Summit Virtual Meeting Series in during July and August.
This series will include three meetings, with research presentations, panelist remarks, sharing of the draft research gaps and opportunities, and moderated discussion/Q&A. These draft gaps and opportunities, developed by the Summit Steering Committee with input from stakeholder groups and organized into six themes, are intended to identify important potential areas for future research in the fields of dementia care and caregiving.
The dates of the Summit Virtual Meetings Series are:
- Friday, July 10, 2020, 1:30-4:30 pm EDT: The first virtual meeting will cover the welcome, setting the stage, Impact of Dementia (Theme 1), and Participation of Persons with Dementia and their Caregivers in Research (Theme 4). Register for the July 10 meeting.
- Thursday, July 21, 2020, 1:00-4:30 pm EDT: The second meeting will cover Long-Term Services and Supports in Home, Community, and Residential Care Settings for Persons with Dementia and their Caregivers (Theme 2), Services and Supports in Medical Care Settings for Persons with Dementia (Theme 3), and Integration: The Present and Future of Integrated Long-Term and Medical Care. Register for the July 21 meeting.
- Thursday, August 13, 2020, 1:30-4:45 pm EDT: The third meeting will cover Intervention Research, Implementation, and Dissemination (Theme 5), Research Resources, Methods, and Data Infrastructure (Theme 6), and Emerging Topics. Register for the August 13 meeting.
The full agendas for all three meetings are now posted online on the 2020 Summit Webpage. Even if you already registered for the March Summit, you must register again to attend these meetings. If you are interested in attending all three meetings, you will have to register for each virtual meeting separately. All three virtual meetings will be recorded and posted publicly for on demand viewing.
In conjunction with the announcement of the Virtual Summit Meeting Series, the NIA has published a Request for Information (RFI) to seek input from stakeholders representing various interested communities, including people living with dementia and care partners, researchers, health care providers, and advocacy organizations. This RFI seeks feedback on the draft research gaps and opportunities developed as part of the Summit and also welcomes questions to spur discussion at the Virtual Summit Meeting Series events. Please note: Though all submitted questions will be reviewed, not all questions can be addressed live during the virtual meetings because of time constraints. Please submit all input via the RFI feedback form.