by Aryana Khalid Making decisions about the end of your life is complicated. And it’s even more complicated if you wait until you are really sick to make those decisions. It’s hard to have these types of discussions with our loved ones when the end seems inevitable. It’s hard for us to think about our […]
by Victoria Walker MD, CMD Caregiving is a universal human experience. Nearly all of us will find ourselves caring for another person who is ill, cognitively or physically disabled, elderly, or frail. Also, most of us will find ourselves needing care eventually, especially if we live long lives. A third of those living past the […]
by Daniel C. Potts, MD, FAAN “Mirror, mirror, on the wall, who in this land is fairest of all? You, my queen, are fair; it is true. But Snow-White is a thousand times fairer than you.” – From Little Snow-White, by Jacob […]
by The Honorable Jim Greenwood Biopharmaceutical companies are at the forefront of expanding our understanding of the genetic and biomolecular basis of disease, and their researchers are committed to developing the next generation of modern medicines. However, this goal can be realized only in an environment of forward-looking public policies that sustain scientific discovery and […]
by Reisa Sperling For so many years now, the focus of Alzheimer’s disease (AD) research has been on trying (and failing) to manage Alzheimer’s symptoms at later stages of the disease, rather than preventing these devastating symptoms from developing in the first place. And over the past ten years or so, as we are painfully […]
by Charles J. Fuschillo, Jr. The cost of providing care for individuals with Alzheimer’s disease and related illnesses is staggering, unsustainable—and exploding. By 2040, the cost of caring for a person with dementia is projected to hit $1 trillion annually, up from $215 billion in 2010. While initial steps toward actualizing the goals of the government’s […]
By Lynda Everman I’ve spent 18 years as an Alzheimer’s caregiver and the last four as an activist. This certainly was not my plan. My 81-year-old dad began to show symptoms of dementia in 1994, the same year that former President Ronald Reagan published his now famous letter to the American people announcing his diagnosis […]
by Stephanie Johnson Monroe, Director of the African American Network Against Alzheimer’s African Americans experiencing health disparities is not new. In fact, according to former Surgeon General of the United States and Honorary Chair of the African American Network Against Alzheimer’s, Dr. David Satcher, race based health disparities in the United States are both “pervasive […]
by Paul Rusk, executive director, Alzheimer’s & Dementia Alliance of Wisconsin Recently, a 67-year-old gentleman wrote this evaluation of our Crossing Bridges Educational Discussion Group: “This program is invaluable. You are a life raft in a sea of fear, grief, confusion, anger and guilt. I don’t know what I would have done without you.” Comments […]
by MaryAnne Sterling , Co-founder of Connected Health Resources To a few close family and friends who know me as a longtime caregiver and advocate for my aging parents and (more recently) my in-laws, I have done the impossible: survived 17 years of struggling to support the needs of three-out-of-four parents who have either died from, […]