The LEAD Coalition thanks our colleagues for their time and expertise for the following guest essays. Please note that the views in guest essays are those of the authors and do not necessarily reflect the views of the LEAD Coalition.
My Five Wishes for the Tough Conversation about Advance Directives
The LEAD Coalition presents the twelfth in its series of guest essays with an op-ed from Aryana Khalid, a managing director at the Glover Park Group and an end of life advocate.
The Family Caregiver Platform Project; A Novel Nonpartisan Initiative
The LEAD Coalition presents the eleventh in its series of guest essays with an op-ed from Dr. Victoria Walker, a clinical associate professor in the Department of Family Medicine and Geriatrics at the University of South Dakota Sanford School of Medicine and an APSA Congressional Health and Aging Policy Fellow.
Reflections from the Mirror of Dementia: Do I Approve of What I See?
The LEAD Coalition presents the tenth in its series of guest essays with an op-ed from Dr. Daniel Potts, a neurologist, author, educator and advocate for people with Alzheimer’s disease and other dementias and their caregivers.
Preparing for a Tsunami of Public Health Challenges
The LEAD Coalition presents the ninth in its series of guest essays with an op-ed from the Honorable Jim Greenwood, who is president and CEO of the Biotechnology Industry Organization (BIO). Greenwood’s essay provides context for BIO’s proposal for a longitudinal study as part of the 21st Century Cures initiative planned for introduction in the 114th Congress.
The Right Target at the Right Time in Alzheimer’s Disease
The LEAD Coalition presents the eighth in its series of guest essays with an op-ed from Harvard professor Dr. Reisa Sperling who lays out the case for the A4 Study (Anti-Amyloid Treatment in Asymptomatic Alzheimer’s), and a call to action for individuals and organizations to work collaboratively to recruit qualified volunteers to participate in this clinical trial aimed at secondary prevention of dementia.
Care Coordination, Greater Support Imperative for Bending the Alzheimer’s Cost Curve
The LEAD Coalition presents the seventh in its series of guest essays with an op-ed from Charles J. Fuschillo, Jr., chief executive officer of the Alzheimer’s Foundation of America, who examines how more efficient care delivery models and enhanced supports can achieve remarkable cost savings and better health outcomes.
My Journey from Caregiver to Activist
The LEAD Coalition presents the sixth in its series of guest essays with an op-ed from Lynda Everman who shares her deeply personal story of transforming from isolated caregiver to relentless activist while encouraging others to join the movement to stop Alzheimer’s disease.
Ending the Disparate Impact of Alzheimer’s Disease on African-Americans
The LEAD Coalition presents the fifth in its series of guest essays with an op-ed from Stephanie Johnson Monroe, director of the African American Network Against Alzheimer’s, which unites and mobilizes the powerful voice of the African-American community to speed the pace of research and build real momentum to end Alzheimer’s disease.
The LEAD Coalition presents the fourth in its series of guest essays with an op-ed from Paul Rusk, executive director of Alzheimer’s & Dementia Alliance of Wisconsin. Through Rusk’s leadership, the organization’s experienced staff and community volunteers deliver services that focus people living with dementia and their care partners on joy, communication and what they can do, rather than on fear, retreat into isolation and what has been lost.
The Invisible Victims of Alzheimer’s Disease: Family Caregivers
The LEAD Coalition presents the third in its series of guest essays with an op-ed from MaryAnne Sterling. She explores the life of family caregivers in the shadows, and opportunities to offer them much-needed support and improve the health care system.
Will the BRAIN Initiative Realize its Full Potential in a Budget-Cutting Climate?
The LEAD Coalition presents the second in its series of guest essays with an op-ed from Mary Woolley, president of Research!America the nation’s largest nonprofit alliance working to make research for health a higher national priority. Woolley asks whether the hope, promise and genuine opportunities for cutting-edge brain research will be dashed by federal budget-slashing fever gripping Washington, D.C.
Confronting Ageism and Stigma to Build the Alzheimer’s Disease Movement
The LEAD Coalition debuts its series of guest essays with an op-ed from Mike Splaine, a Washington, D.C. health policy and advocacy consultant who has devoted the past two decades of his career to building grassroots capacity for the emerging Alzheimer’s disease movement. In this poignant and no-holds-barred essay, Splaine confronts the ageism and stigma impeding progress against this devastating disease.