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LEAD Coalition Urges Senators, Representatives to Cosponsor the HOPE for Alzheimer’s Act

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Fifty-seven LEAD Coalition member organizations and supporters wrote to all Members of Congress encouraging them to cosponsor the the Health Outcomes, Planning, and Education (HOPE) for Alzheimer’s Act (S.709/H.R. 1507) which would help ensure that individuals receive an appropriate diagnosis, and that they and their family get critical information about the disease and available care options.  Read the House letter […]

LEAD Coalition Calls on Congress to Increase Research, Care and Support Appropriations

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Sixty LEAD Coalition member organizations and supporters wrote to the U.S. House and Senate appropriations leadership in support of the Administration’s fiscal year 2014 budget proposal to provide an additional $80 million for Alzheimer’s disease and related disorders research at the National Institutes of Health and an additional $20 million to the Administration on Community […]

LEAD Coalition Urges CMS to Approve PET Amyloid Imaging

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Thirty-seven LEAD Coalition member organizations and supporters wrote to the Centers for Medicare and Medicaid Services (CMS) to encourage issuance of a National Coverage Decision with immediate effect for PET amyloid imaging in the evaluation of progressive cognitive decline when its use follows the appropriate use criteria (AUC) developed by the Alzheimer’s Association and Society […]

LEAD Coalition Comments on FDA Draft Guidance for Development of Drugs for Early Stage Alzheimer’s Disease

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Forty-seven LEAD Coalition member organizations and supporters joined together to submit formal comment welcoming the U.S. Food and Drug Administration (FDA) draft guidance which outlines FDA’s current thinking as to how to a drug developer may demonstrate efficacy in clinical trials in patients in the early stages of Alzheimer’s disease that occur before the onset of overt dementia. Read more…