LEAD Coalition Strengthens Call for CMS to Approve PET Amyloid Imaging

Following on an April comment letter, fifty-five LEAD Coalition member organizations and supporters wrote again in early August encouraging the Centers for Medicare and Medicaid Services (CMS) to issue a National Coverage Decision allowing PET amyloid imaging in the evaluation of progressive cognitive decline under the narrowly defined circumstances of the appropriate use criteria (AUC) […]

The Invisible Victims of Alzheimer’s Disease: Family Caregivers

by MaryAnne Sterling , Co-founder of Connected Health Resources To a few close family and friends who know me as a longtime caregiver and advocate for my aging parents and (more recently) my in-laws, I have done the impossible: survived 17 years of struggling to support the needs of three-out-of-four parents who have either died from, […]

LEAD Coalition Builds Momentum for Expanded Research, Care and Support Funding

On the eve of action on the Health-Education-Labor Appropriations bill, LEAD Coalition executive director reiterated to Senate appropriators the urgency to provide at least the $100 million in additional funding for Alzheimer’s disease and related disorders as set forth in the President’s FY 2014 budget proposal. Read the July 8 letter.

Will the BRAIN Initiative Realize its Full Potential in a Budget-Cutting Climate?

by Mary Woolley, Research!America president and CEO Lofty goals are exactly what are needed to tackle daunting challenges. President Obama has recently announced just such a lofty goal. The Brain Research through Advancing Innovative Neurotechnologies (BRAIN Initiative) promises profound impact for patients, caregivers, clinicians and others who cope with the effects of Alzheimer’s disease and other […]

LEAD Coalition Calls on Congress to Increase Research, Care and Support Appropriations

Sixty LEAD Coalition member organizations and supporters wrote to the U.S. House and Senate appropriations leadership in support of the Administration’s fiscal year 2014 budget proposal to provide an additional $80 million for Alzheimer’s disease and related disorders research at the National Institutes of Health and an additional $20 million to the Administration on Community […]

LEAD Coalition Urges CMS to Approve PET Amyloid Imaging

Thirty-seven LEAD Coalition member organizations and supporters wrote to the Centers for Medicare and Medicaid Services (CMS) to encourage issuance of a National Coverage Decision with immediate effect for PET amyloid imaging in the evaluation of progressive cognitive decline when its use follows the appropriate use criteria (AUC) developed by the Alzheimer’s Association and Society […]