Seventy-one LEAD Coalition member organizations and supporters wrote to the House Energy & Commerce Committee encouraging it convene a hearing this fall on Alzheimer’s disease and related disorders, with a particular focus on implementation of the National Plan to Address Alzheimer’s Disease. Read the letter.
The LEAD August newsletter has been posted. View it online here. Subscribe to the newsletter here.
by Paul Rusk, executive director, Alzheimer’s & Dementia Alliance of Wisconsin Recently, a 67-year-old gentleman wrote this evaluation of our Crossing Bridges Educational Discussion Group: “This program is invaluable. You are a life raft in a sea of fear, grief, confusion, anger and guilt. I don’t know what I would have done without you.” Comments […]
Fifty-seven LEAD Coalition member organizations and supporters wrote to all Members of Congress encouraging them to cosponsor the the Health Outcomes, Planning, and Education (HOPE) for Alzheimer’s Act (S.709/H.R. 1507) which would help ensure that individuals receive an appropriate diagnosis, and that they and their family get critical information about the disease and available care options. Read the House letter […]
Following on an April comment letter, fifty-five LEAD Coalition member organizations and supporters wrote again in early August encouraging the Centers for Medicare and Medicaid Services (CMS) to issue a National Coverage Decision allowing PET amyloid imaging in the evaluation of progressive cognitive decline under the narrowly defined circumstances of the appropriate use criteria (AUC) […]
The LEAD July newsletter has been posted. View it online here. Subscribe to the newsletter here.
by MaryAnne Sterling , Co-founder of Connected Health Resources To a few close family and friends who know me as a longtime caregiver and advocate for my aging parents and (more recently) my in-laws, I have done the impossible: survived 17 years of struggling to support the needs of three-out-of-four parents who have either died from, […]
On the eve of action on the Health-Education-Labor Appropriations bill, LEAD Coalition executive director reiterated to Senate appropriators the urgency to provide at least the $100 million in additional funding for Alzheimer’s disease and related disorders as set forth in the President’s FY 2014 budget proposal. Read the July 8 letter.
The LEAD June newsletter has been posted. View it online here. Subscribe to the newsletter here.
by Mary Woolley, Research!America president and CEO Lofty goals are exactly what are needed to tackle daunting challenges. President Obama has recently announced just such a lofty goal. The Brain Research through Advancing Innovative Neurotechnologies (BRAIN Initiative) promises profound impact for patients, caregivers, clinicians and others who cope with the effects of Alzheimer’s disease and other […]