The LEAD Coalition educates and advises non-governmental organizations and Congress regarding legislation that would accelerate (or jeopardize) transformational progress in: (1) care and support to enrich the quality of life of those with dementia and their caregivers; (2) detection and diagnosis; and (3) research leading to prevention, effective treatment, and eventual cures. In recent years, the LEAD Coalition has been engaged in a wide variety of legislation including the 21st Century Cures Act (Pub.L. 114 – 255), the Building Our Largest Dementia (BOLD) Infrastructure for Alzheimer’s Act (Pub. L. 115 – 406), the Concentrating on High-Value Alzheimer’s Needs to Get to an End (CHANGE) Act (S. 2387/H.R.4957) , the Palliative Care and Hospice Education and Training (PCHETA) Act (H.R. 647), and the Recognize, Assist, Include, Support, and Engage (RAISE) Family Caregivers Act (Pub. L. 115 – 119).The LEAD Coalition is tracking these pieces of legislation relevant to the Alzheimer’s and dementia community. Details about these bills and additional legislation will be added periodically.

• Geriatrics Workforce Improvement Act (S.299)
• Family and Medical Insurance Leave Act (FAMILY Act) (S.463/H.R.1185)
• Seniors Fraud Prevention Act of 2019 (S.512)
• Empowering Beneficiaries, Ensuring Access, and Strengthening Accountability Act of 2019 (S.548/H.R.3253)
• Guardianship Accountability Act of 2019 (S.591)
• Ensuring Medicaid Provides Opportunities for Widespread Equity, Resources, and Care Act (EMPOWER Care Act) (S.548/H.R.1342)
• Senior and Disability Home Modification Assistance Initiative Act (S.702/H.R.1583)
• Alzheimer’s Caregiver Support Act (S.740)
• Improving HOPE for Alzheimer’s Act (S.880/H.R.1873)
• Younger-Onset Alzheimer’s Disease Act (S.901/H.R.1903)
• Supporting America’s Caregivers and Families Act (S.1017)
• Concentrating on High-Value Alzheimer’s Needs to Get to an End (CHANGE) Act (S.1126/H.R.2283)
• Palliative Care and Hospice Education and Training Act (PCHETA) (S. 2080/H.R.647)
• Alzheimer’s Semipostal Stamp Act (S.1728/H.R.3113)
• Adult Day Center Enhancement Act (H.R.320)
• Protecting Married Seniors from Impoverishment Act (H.R. 1343)
• Alzheimer’s Research and Caregiving (ARC) Trust Fund Act (H.R.3453)
• The Patient-Centered Outcomes Research Institute (PCORI) Reauthorization (introduction expected soon, see https://reauthorizepcori.org/resources/ for more information)
• Older Americans Act Reauthorization Act (introduction expected soon, see https://www.n4a.org/oaa for more information )